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Yes, I've heard that it's harder to get guardianship, because of Britney Spears. We had no problem last year, and my son has an above average IQ. It's been handy when talking with an insurance company. Otherwise, we've never needed it. It's a just in case thing.

Our lawyer told us to not put anything in the trust. SSI asked us about money in a special needs trust. The trust exists only as a vehicle to hold Ian's inheritance when we die. There are other place to put a small amount of savings for special needs people. In NJ, we have ABLE accounts, but I haven't done that yet.

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While évery parent of a child with a disability should inquire about guardianship, at least in New York where I live, the courts are applying a stricter standard and it is becoming more difficult to make the argument that someone is sufficiently disabled to warrant being deprived of legal agency.

Separately, SNT balances do not have to be below $2000 - if properly done, by design they are not countable assets for Medicaid or SSI eligibility.

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